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In 2014, an estimated 1.66 million people will receive a diagnosis of cancer. They will join a pool of 13.7 million Americans already living with a history of cancer. Almost 600,000 Americans will die from cancer. For some, cancer will be only a short divergence. For others, however, it will be a dramatic fork in the road. And for still others, the beginning of the end of the line.
This book guides cancer patients along their journey where no one knows the duration or the destination. Divided into the three parts of being a cancer patient—the diagnosis, initial treatment, and on to survivorship—the book will help the newly diagnosed cancer patient navigate a complex health care system, make astute decisions at difficult junctures, and manage the emotional turbulence that can rock his or her world. Lastly, it shares the story of how the author and his wife, as well as other cancer patients, have confronted their disease.
- Sales Rank: #993819 in Books
- Published on: 2015-07-16
- Original language: English
- Number of items: 1
- Dimensions: 9.23" h x 1.13" w x 6.35" l, 1.00 pounds
- Binding: Hardcover
- 320 pages
Review
A cancer diagnosis marks the beginning of a long, challenging journey through alien territory. Leifer, a health-care administrator and founder of the Leifer Report, has written an informative guidebook for that journey, intended to help patients 'navigate a complex health-care system, feel empowered to make astute decisions at difficult junctures, and manage the emotional turbulence along the way.' Chapters cover choosing doctors, managing pain and side effects, using complementary therapies, surviving cancer, choosing to stop treatment, death and dying, and more. Leifer focuses on information to support decision making, offering lists of questions to ask providers and quotes from research findings and patients and caregivers. He offers information that is balanced and medically sound: for example, he describes a valid role for complementary therapies while condemning quackery. . . . VERDICT Recommended for medically literate cancer patients who want to make well-informed decisions about their treatments. (Library Journal)
There were many things I appreciated about After You Hear It's Cancer, including its ability to give factual information without too much jargon and to clearly define the acronyms that are so common and confusing in health care. It is rare to find a book that speaks so clearly to such a variety of constituents, and it would have great value to health care workers, patients and families/caregivers along the whole cancer journey. . . . [E]ach chapter can stand alone and would benefit an individual wherever he or she is on the entire spectrum of dealing with cancer. . . . I think a word to describe After You Hear It's Cancer as a whole would be 'empowering.' . . . Suggestions regarding getting psychological help, either as a patient or a caregiver, are presented in a very positive manner and not as something to pursue because you are a failure in the realm of cancer care. I think the authors strike a good balance between giving information, providing encouragement and normalizing a situation that can feel out of control. I definitely want to call attention to the last part of the book — what a wealth of solid, practical information. Sources used for the book are well documented and offer credibility to the work, but perhaps even more important is that the sources can be a lifeline to more information if desired by professionals, patients and caregivers. The resource section, bibliography and index also offer many paths to in-depth information, which for some cancer patients and caregivers is an essential part of their cancer journey. After I finished reading the book, I went through the index and found the topics very helpful for reviewing some areas I found particularly informative or challenging. This book would be very appropriate in a waiting room, in a health care professional's office or to have at home as a valuable source of information. As the cancer journey continues, different topics take on added meaning — at the start, treatment options would be a priority, but later on, the information on being a survivor would be of greater value. Some cancer journeys also will require information on palliative care, hospice services and other end-of-life considerations, all of which are covered, as well. In short, everything for the cancer journey is readily available in this book — a very valuable resource indeed. (Health Progress: Journal of the Catholic Health Association of the United States)
Overall, I appreciated the meaningful intent of this book. (AMWA Journal)
John and Lori Leifer have provided an insightful and compassionate navigation path from diagnosis to closure after you hear it’s cancer. Take the journey with them, it’s well worth it. (Richard Carmona, MD,MPH,FACS, 17th Surgeon General of The United States; Distinguished Professor University of Arizona)
If you are a cancer patient, caregiver, or a cancer care provider, this is one book you must read! This is an excellent, comprehensive discussion of the journey a cancer patient takes once they hear “It’s Cancer”. (Daniel P. McKellar, MD, FACS, Chair, Commission on Cancer)
After You Hear It’s Cancer provides a wealth of information to assist patients and their families navigate the complicated cancer care system and to participate in the decision making process for their own care. The patient stories interwoven throughout the book make the experience personnel, real, and understandable. (Robert W. Carlson, Professor Emeritus of Medicine, Stanford University Medical Center Chief Executive Officer, National Comprehensive Cancer Network)
People who are told they have cancer can feel swept into a dizzying landscape of doctors’ appointments, diagnostic tests, procedures, and treatments, as well as seemingly irrational insurance requirements, forms, and bills. All the while a foreboding distant thunder and storm clouds threaten life itself. After You Hear It’s Cancer is a reliable GPS and bright light with which to navigate that terrain. This hopeful, empowering book is worth giving to every person diagnosed with cancer. (Ira Byock, MD, director of the Providence Institute for Human Caring; professor, Dartmouth’s Geisel School of Medicine; author of Dying Well and The Best Care Possible)
The best time to read After You Hear It's Cancer is long before you or a loved one is ever diagnosed with this difficult disease. John and Lori Leifer's explanations and descriptions are given in a concise, clear, and chronological manner. The information contained in this book will prepare you to help your friends, family, or yourself should any of you hear the words, "You have cancer." (Annette Bloch, co-founder, R.A. Bloch Cancer Foundation)
This book is a very complete and updated guide to the complex world of cancer diagnosis, care, and treatment. It will be helpful to many patients and families who are looking for additional information to supplement that provided by the healthcare system (Julie M. Vose, M.D., M.B.A., Neumann M. and Mildred E. Harris Professor and chief of the section of hematology/oncology at University of Nebraska Medical Center)
I've spent a lot of time communicating with people who have just been diagnosed with cancer. Over nearly a decade working with the world first and leading cancer center, I thought long and hard about how to help people who have just received the shock of their lives make the best choices for themselves and the ones they love. I know how badly they need guidance from people they can trust. John and Lori Leifer are those people, and this book answers that need. Written by two deeply experienced experts in the clear and caring voice of a true friend, After You Hear It's Cancer is destined to be a classic. (Mark DiMassimo, Founder and Chief, DiMassimo Goldstein)
From the Inside Flap
This book guides cancer patients along a journey where no one knows the duration or the destination. Divided into the three parts of being a cancer patient--the diagnosis, initial treatment, and on to survivorship--the book will help the newly diagnosed cancer patient navigate a complex health care system, make astute decisions at difficult junctures, and manage the emotional turbulence that can rock his or her world. Lastly, it shares the story of how the author and his wife, as well as other cancer patients, have confronted their disease.
From the Back Cover
JOHN LEIFER worked for more than thirty years with the major factions comprising healthcare delivery in the United States, including some of the nation's leading hospitals. Most recently, he served as a senior vice president for a ten-hospital system in the Midwest.
Leifer founded and published The Leifer Report, a healthcare publication that featured contributors ranging from President Bill Clinton to Newt Gingrich. He has written extensively on healthcare issues and has been published in newspapers and magazines, such as Modern Healthcare, Hospitals & Health Networks, Washington Monthly, and The Kansas City Star. Leifer has also been profiled in several prominent magazines, including Money and Fortune.
LORI LINDSTROM LEIFER, MD, is both a cancer doctor and a cancer patient. As a radiation oncologist, she has provided care to cancer patients for the past twenty-five years. As a faculty member with a NCI-designated Cancer Center, Lori sees a broad array of cases. Prior to her academic affiliation, Lori spent many years serving a largely indigent population in a mission-driven practice. In addition to her clinical practice,
Lori holds a teaching position, as an assistant clinical professor, within the University of Kansas School Of Medicine. Lori is a member of the American Society of Therapeutic Radiation and Oncology, the American Society of Clinical Oncology, and the Alpha Omega Alpha Medical Society..
Most helpful customer reviews
1 of 1 people found the following review helpful.
You Don't Have to Fear the C Word
By Dr Conrade Yap
The C word strikes fear initially. Once it has sunk in, the emotions are often mixed with both confusion as well as moments of clarity about what life is really about. Calling it a "life changing experience," author John Leifer shares from the heart about his journey with his wife, who was diagnosed with malignant breast cancer. Like what his wife felt about encountering cancer for the first time, the feeling is one of being overwhelmed and shut down. Making decisions about what to do next becomes an even greater challenge with stress and anxiety swirling around. Quoting Karen Sepucha of Harvard Medical School, it is a common scenario that even those who had overcome past challenges will find it difficult to help themselves. That is why people with cancer need support. That is why families of cancer patients need help. That is why books like this is a valuable resource to help deal with the difficult path carved by the news of cancer.
In writing this book, senior health executive and author John Leifer hopes to empower readers toward better decision making when hearing news about cancer. He guides us through the experiences of ten individuals plus his wife Lori, to give us a first person account of the long and difficult journey. He leads us through the BEFORE-DURING-AFTER phases of cancer treatments.
The BEFORE stage starts with the initial diagnosis and treatment planning. Get the accurate diagnosis. Be aware of the five categories of cancer, and to seek expert advice on which is directly affecting the patient. Learn about the different test types: Physical; Lab; Diagnostic Imaging; Biopsy; genetic Testing. Identify the actual cancer type. Find the stage as accurately as possible. Without the initial diagnosis, it is hard to work out prognosis (predicting the development and working out the next best steps). Learn as much as possible and if needed, find out how much truth physicians are keeping from us. Finding the right doctor is one of the most important decisions ever to make. Know the role of the oncologist, the clinic's reputation, the health system, the cancer specialist hospitals, and so on. Make sense of the treatments before choosing the most appropriate. Understand the place and purpose of clinical trials and adjust our expectations accordingly. Often, a second opinion is needed.
The DURING stage is a result of the decisions made earlier. At this point, the path has already been set. Emotionally it will be a roller-coaster experience. There will be times where things seem to be getting worse and also times when hope sings louder than all. There will be anxiety and depression interrupted by periodic times of gladness for family and friends. Leifer perceptively points out that some people do encounter greater difficulty than most. They would need additional support to walk them through the various distress levels. Some positive helps include:
Physical exercise to help deal with body and emotional stresses
Quietness and Contemplation to strengthen our inner selves
Journaling to express our state of mind and emotions
Gratitude for our blessings and gladness for support groups
We learn about how to minimize the side effects of treatment, like fatigue, hair loss, physical pain, appetite, and others. At the same time, we get many tips about what to eat. The ABCs of nutrition is one example. Often, patients need guidance on the best menu for their daily needs. Pain as a "fifth vital sign" is actually a sign of health and well-being. Leifer finds it helpful to know the following about pain.
"It is usually a signal that body tissue is being injured in some way, and it generally disappears when the injury heals. Chronic pain may range from mild to severe, and is present to some degree for longer periods of time (generally lasting longer than three to six months). Because pain is unique to each individual, a person’s pain cannot be evaluated by someone else."
Other considerations include the other 3 Cs: Costs, Complementary therapies, and Caregivers.
At the AFTER phase, the case is often whether the treatment is sufficient or insufficient. Either way, it demands different ways of dealing with it. When insufficient, patients need to work with their doctors again on the next steps. With cancer often an incurable disease, no treatment is ever guaranteed. For some, cancer will never go away, no matter the treatment. The "Middle Stage" of cancer is a way of describing a person's journey mid-way through cancer. At this stage, it can go either way: For better or for worse. It is a delicate place to be in, with hope and disappointment keeping each other at bay. There are notes about life after surviving cancer. There are difficult decisions to make about lifestyle changes. Some may need to slow down their pace of life. Others go on to palliative or hospice care. The final chapter about the end of life can look depressing at first, but it is an extremely practical way to deal with a real problem.
I find the last chapter particularly touching, with the author's wife, Lori writing a brief note about her own journey through cancer treatment. It is not giving advice. It is about the sharing of her struggles and the hope that she gives that makes it so inspiring. The authors do not write this book from an ivory tower perspective. They have shared with us their stories of how cancer had impacted their lives, what we can learn from their experiences, how we can deal with our own situations, and many more. This book is one of the best guides I have ever read with regards to cancer treatments and dealing with them. From beginning to end, from diagnosis to prognosis, before, during, and after the treatment, almost every stone was turned to reveal the deep seated complexities. Cancer is not simply a six letter word to be feared. It is a life-changer. It is test of human resilience. It is an opportunity for us to find out the worst of the disease and the best of the human spirit. Take heart. You don't have to fear the C word.
Rating: 5 stars of 5.
conrade
This book is provided to me courtesy of Bowman and Littlefield via NetGalley in exchange for an honest review. All opinions offered above are mine unless otherwise stated or implied.
1 of 1 people found the following review helpful.
SMALL GROUP RESOURCE
By Clayton
As a leader of cancer support groups, I highly recommend this book as a great resource. The book's structure into three parts lends itself as an outstanding study and reflection guide. It is a resource that also benefits the family and friends of those with cancer. One of the best therapeutic processes of small groups is story telling. John and his wife Lori offer their story and journey with caring concern and significant understanding. The book is packed with authentic stories and antidotes of so many others, as well. The index and the bibliography are excellent and comprehensive for anyone taking this study seriously.
1 of 1 people found the following review helpful.
Outstanding guide to the healthcare maze
By DarbyRose
I received this book a few days after I received my own diagnosis of cancer. The most helpful aspect of this book is that it looks at the care not only through the patient's eyes but also through the caregiver's perspective. It is easily understandable by a layperson and provides a logical map to work your way through the healthcare maze. This book has been a godsend to me and I highly recommend it to anyone dealing with cancer in their life or those of their family.
I received an ARC from the publisher.
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